Stay Tuned for 2023 Location and DatesVideos from our 2022 conference are available under the "Schedule" tab. Past conferences videos are available by year under the "Past Conferences" tab.
Each day will offer new and exciting opportunities for our PURA family to connect with clinicians, researchers and other parents and caregivers.
Who Should Participate
This event is open to anyone who has a connection to someone with PURA Syndrome, including family, caregivers, friends, therapists, clinicians, researchers and scientists.
Countdown to Conference