2024 Conference

June 21-23, 2024

This June we will assemble old friends, newly diagnosed families, researchers, clinicians and others for a two day interactive and immersive conference in Chicago, IL, USA.  

The conference will be held at  Embassy Suites by Hilton Chicago/Schaumburg.

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Who Should Participate

This event is open to anyone who has a connection to someone with PURA Syndrome, including family, caregivers, friends, therapists, clinicians, researchers and scientists.

Conference Schedule

Each day will offer new and exciting opportunities for our PURA family to connect with clinicians, researchers and other parents and caregivers.

Interested in being a Sponsor for our Conference?

We are in need of sponsors to support our annual conference! In supporting this conference, you provide our global medical team the chance to come together and make plans for future research to benefit PURA syndrome patients. Funds will go directly to funding our annual conference. Your sponsorship is a wonderful way to show your support to families living with this rare disease. All donations and support are much appreciated. With your help, there is much hope for the future.

Feature your PURAPerfect Child or Relative!

This year’s conference will be special in so many ways. One way you can participate is to feature your PURAPerfect Child or your PURAPerfect Relative in the conference program and online!

We are now offering families and friends the ability to purchase program ads. Your support is a great way to recognize a particular family and/or child and a wonderful way to support our PURA community of families living with this rare disease. All proceeds will go directly to funding our annual conference.

Book your room at the Conference Hotel

The conference takes place from June 21-23, however, we have a reduced rate from Thursday through Sunday night for anyone who would like to stay longer. Please click this link to book our Conference hotel. If you have any questions, please contact Melissa Vaught at [email protected].

Register for the FREE Abilities Expo!

The PURA Conference is taking place the same weekend as the Abilities Expo. It may be something you want to check out while you are here as it is within walking distance to our conference hotel. The Chicago Abilities Expo will have products and technology to view and demo, as well as workshops to attend, or simply connect with others in the disability community. It’s free but you will need to register if plan to attend. 

Countdown to Conference