2026 PURA Syndrome Conference
June 26-28, 2026 in Munich, Germany

2026 Conference

June 26-28, 2026


This June we will assemble old friends, newly diagnosed families, researchers, clinicians and others for a two day interactive and immersive conference in Munich, Germany.

The conference will be held at the Holiday Inn Munich – City Centre.

Learn MoreRSVP to Participate

Who Should Participate

This event is open to anyone who has a connection to someone with PURA Syndrome, including family, caregivers, friends, therapists, clinicians, researchers and scientists.

Conference Schedule

Each day will offer new and exciting opportunities for our PURA family to connect with clinicians, researchers and other parents and caregivers.

Book your room at the Conference Hotel

The conference takes place from June 26-28, 2026 however, we have a reduced rate from Thursday through Sunday for anyone who would like to stay longer. Please click this link to book our Conference hotel.

For ADA-compliant rooms or rooms with connecting doors, kindly contact the Hotel Reservations Team at: reservation@himunich.com

If participants would like to reserve a twin room, they can also contact the Hotel Reservations team at: reservation@himunich.com

If you have any questions, please contact Melissa Vaught at m.vaught@pura-syndrome.org.

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