2026 Conference
June 26-28, 2026
This June we will assemble old friends, newly diagnosed families, researchers, clinicians and others for a two day interactive and immersive conference in Munich, Germany.
The conference will be held at the Holiday Inn Munich – City Centre.
Who Should Participate
This event is open to anyone who has a connection to someone with PURA Syndrome, including family, caregivers, friends, therapists, clinicians, researchers and scientists.
Conference Schedule
Each day will offer new and exciting opportunities for our PURA family to connect with clinicians, researchers and other parents and caregivers.
Feature your PURAPerfect Child or Relative!
This year’s conference will be special in so many ways. One way you can participate is to feature your PURAPerfect Child or your PURAPerfect Relative in the conference program and online!
We are now offering families and friends the ability to purchase program ads. Your support is a great way to recognize a particular family and/or child and a wonderful way to support our PURA community of families living with this rare disease. All proceeds will go directly to funding our annual conference.
Book your room at the Conference Hotel
The conference takes place from June 26-28, 2026 however, we have a reduced rate from Thursday through Sunday for anyone who would like to stay longer. Please click this link to book our Conference hotel.
For ADA-compliant rooms or rooms with connecting doors, kindly contact the Hotel Reservations Team at: reservation@himunich.com
If participants would like to reserve a twin room, they can also contact the Hotel Reservations team at: reservation@himunich.com
If you have any questions, please contact Melissa Vaught at m.vaught@pura-syndrome.org.
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