Pura Syndrome Conference 2022 – Together We Are Stronger

Stay Tuned for 2023 Location and Dates

Videos from our 2022 conference are available under the "Schedule" tab. Past conferences videos are available by year under the "Past Conferences" tab.

Schedule

Each day will offer new and exciting opportunities for our PURA family to connect with clinicians, researchers and other parents and caregivers.

Who Should Participate

This event is open to anyone who has a connection to someone with PURA Syndrome, including family, caregivers, friends, therapists, clinicians, researchers and scientists.

Countdown to Conference

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