PURA Syndrome Conference | June 23-25, 2023


We are excited to welcome you to this year’s PURA Conference! Our conference is open to anyone who has a connection to someone with PURA Syndrome, including (but not limited to) family, caregivers, friends, therapists, clinicians, researchers, and scientists.

WHAT YOU CAN DO:  Join us! If you can, please join in person. We know this is not possible for many of our families and we’ll record many of the sessions to post after the conference.

Send your questions! Let us know what questions you would like to ask the researchers and we will address them in the final elements session. Email them to [email protected].

We do require that everyone register to participate so that we can ensure we accomodate the needs for all who attend. Please click the link below to register.

Register Here!
Book your Room at the Conference Center

You may book up to 4 nights, however we do have limited availability on the Sunday, June 25 so please be sure to book as soon as possible if you plan on staying that night. Use promotion code PURA23 when booking a hotel room.

If you have any questions, please contact Hannah at

Book your room by clicking here
Can't Attend in Person? Attend the 2023 Conference Virtually!
Click here to Register for the Virtual Conference