About
PURA Syndrome Conference | June 27-29, 2025The conference will be held at Embassy Suites by Hilton Grapevine DFW Airport North
- Hotel/conference facility with overnight accommodations and meeting areas allowing it to be easy for families to join sessions, have meals and lots of opportunities to be able to connect. All rooms have a separate living area with a pull out couch.
- Hotel is three (3) miles from DFW International Airport.
- Hotel offers free airport shuttle and accessible transportation with advance notice.
- Hotel offers discounted parking for $15/night with your group rate.
- Hotel offers free daily made-to-order breakfast.
- Hotel offers free evening receptions.
- Hilton Grapevine is home to many family friendly attractions including: located next door to Bass Pro Shops, under a mile from Grapevine Mills mall including the Dallas LEGOLAND. Historic downtown Grapevine is a ten-minute drive. Enjoy access to indoor pool and fitness center featuring a Peloton® Bike with toe cages.
Experience
We have a variety of activities planned for the conference including discussions, networking events and activities.
Research
The conference will be packed with sessions focusing on current research and information vital to PURA families. Researchers and clinicians are expected to attend in person, and it is an opportunity for parents to meet these extraordinary people – and to have the researchers meet the parents and our extraordinary children. Expect to learn, question and engage with the presenters in the formal sessions and socially at the end of the day.
Learning from Others
The conference is an important time to connect as parents, siblings, and caretakers. These connections strengthen us and provide a way to share and learn from others in our PURA family. Parents and caregivers will participate in panel discussions and 1:1 conversation that get to the heart of issues families face every day. We’ll also have time to just talk and meet new friends!
WHAT YOU CAN DO: Join us! If you can, please join in person. We know this is not possible for many of our families and we’ll record many of the sessions to post after the conference. We will also have a virtual option avaialable.
Send your questions! Let us know what questions you would like to ask the researchers and we will address them in the question and answer session. Email them to [email protected].