Resources
PURA Syndrome 2022 Virtual Conference | June 10–13, 18
PURA Ambassadors
Contact Information for our PURA Ambassadors:
france@pura-syndrome.org – Melanie
germany@pura-syndrome.org – Jennifer
italy@pura-syndrome.org – Francesca
spain@pura-syndrome.org – Mireia
uk@pura-syndrome.org – Mel
us@pura-syndrome.org – Melissa
caringtogether@pura-syndrome.
Introduction to the Global Research Network
The Kindness Method
Self Care for Caregivers
Building Confidence with Body Language and Communication Skills
Resources from the PURA Syndrome 2021 Virtual Conference | June 5–12
Financial Planning
Contact Information for the Presenters:
Nicholas A. Lambros, Esq.
Lambros Law Office LLC
100 Midway Road, Suite 16
Cranston, Rhode Island 02920
Phone number: (401) 383-9899
NLAMBROS@LAMBROSLAWLLC.COM
Tony Ruzzo, CPFA, CRPC, CFP
Merrill Wealth Management Advisor
One Financial Plaza, Suite 2300
Providence, RI 02903
Phone number: (401) 863-8628
anthony_ruzzojr@ml.com
Getting Into Your Child’s World: Speech and Language Therapy with Rachael Rose
In James’ Shoes: A Story of Hope and the JPC Community Farm with Paul & Julie Connaughton
Introduction to Epilepsy with Richard Leventer
Music for Connection and Communication I & II with Miriam Tart
For Session I: Found Sound Ideas
For Session II: Count On Me Songwriting