Resources
Resources from the PURA Syndrome 2025 Conference, Dallas, Texas, USA | June 27–29, 2025
Insurance Survey
Access to care is critical to the wellbeing of our community. Understanding your health plan is essential to making the most of your coverage and accessing the care you need. Insurance Advocate Michelle Rice will be giving an presentation at the conference. Please take this 5 minute survey to help identify any resources we may need to develop to assist you in navigating and utilizing your health plan.
Sunday Advocacy Presentations
Sarah Parks – Partnership Between Home and School
Dr. Mary Ann Morris –
Dr. Patricia Evans – Empowering Parent Advocacy: Navigating Healthcare Needs
Resources from the PURA Syndrome 2024 Conference, Chicago, IL, USA | June 21–23, 2024
Registry Sheet
Sign-up for the Registry Today!
Anna Ware, MS, CCC/SLP Slideshow Presentation
Resources from the PURA Syndrome 2022 Virtual Conference | June 10–13, 18
Introduction to the Global Research Network
The Kindness Method
Self Care for Caregivers
Building Confidence with Body Language and Communication Skills
Resources from the PURA Syndrome 2021 Virtual Conference | June 5–12
Financial Planning
Contact Information for the Presenters:
Nicholas A. Lambros, Esq.
Lambros Law Office LLC
100 Midway Road, Suite 16
Cranston, Rhode Island 02920
Phone number: (401) 383-9899
NLAMBROS@LAMBROSLAWLLC.COM
Tony Ruzzo, CPFA, CRPC, CFP
Merrill Wealth Management Advisor
One Financial Plaza, Suite 2300
Providence, RI 02903
Phone number: (401) 863-8628
anthony_ruzzojr@ml.com
Getting Into Your Child’s World: Speech and Language Therapy with Rachael Rose
In James’ Shoes: A Story of Hope and the JPC Community Farm with Paul & Julie Connaughton
Introduction to Epilepsy with Richard Leventer
Music for Connection and Communication I & II with Miriam Tart
For Session I: Found Sound Ideas
For Session II: Count On Me Songwriting