Resources from the PURA Syndrome 2024 Conference, Chicago, IL, USA | June 21–23, 2024

Registry Sheet

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Anna Ware, MS, CCC/SLP Slideshow Presentation

Resources from the PURA Syndrome 2022 Virtual Conference | June 10–13, 18

Introduction to the Global Research Network
The Kindness Method
Self Care for Caregivers
Building Confidence with Body Language and Communication Skills

Resources from the PURA Syndrome 2021 Virtual Conference | June 5–12

Financial Planning

Contact Information for the Presenters:

Nicholas A. Lambros, Esq.
Lambros Law Office LLC
100 Midway Road, Suite 16
Cranston, Rhode Island 02920
Phone number: (401) 383-9899
[email protected]


Tony Ruzzo, CPFA, CRPC, CFP
Merrill Wealth Management Advisor
One Financial Plaza, Suite 2300
Providence, RI 02903
Phone number: (401) 863-8628
[email protected]

Getting Into Your Child’s World: Speech and Language Therapy with Rachael Rose
In James’ Shoes: A Story of Hope and the JPC Community Farm with Paul & Julie Connaughton
Introduction to Epilepsy with Richard Leventer
Music for Connection and Communication I & II with Miriam Tart

For Session I: Found Sound Ideas

For Session II: Count On Me Songwriting

Sharing Zone with Caroline Thorpe
When the Stress of the NICU/PICU Goes Away, Trauma May Last with Casey Jones