Schedule

PURA Syndrome 2025 Conference | June 27–29

Over the conference weekend, we’ll engage in a lot of discussions and have opportunities to ask important questions. We’ll draw on the collective experience and insights of our scientists and families through open dialogue. We’ll have open and important conversations, learn from the experts and each other and uncover the inspiring people who are part of our community.

All times listed are in Central Daylight Time (CDT) below, but please check your local time zone to the time listed to be sure you have the correct time. Schedule is subject to change.

Submit a Question - coming soon!

Below is an outline of the schedule. Keep checking back for updates as they become available!

Friday, June 27, 2025

9:00 AM – 3:00 PM CDT

Optional Activites around Dallas

For families that are coming in Thursday evening, we will have some suggested activities for you to participate in.

3:00-5:00 PM CDT

Registration and Meet & Greet

5:00-5:45 PM CDT

Welcome and Opening Session

Liz Astridge &
Eva Tucker

 

State of the Foundation/Town Hall

6:00-7:30 PM CDT

Evening Reception

Atrium Bar

Casual Meet and Greet at the Atrium Bar: Attendees with accommodations at Embassy Suites will receive 2 complimentary drink tickets per room (Valid from 5:30 – 7:30 pm…after 7:30 it will be a cash bar). Cash bar for those not staying at the hotel. 

Saturday, June 28, 2025

7:00-8:30 AM CDT

Breakfast

Complimentary Breakfast for Hotel Guests

9:00 AM -12:30 PM CDT

Conference Sessions

12:30-1:30 PM CDT

Lunch

1:30-5:00 PM CDT

Conference Sessions

5:00 PM CDT

Brief closing for the day

6:30-8:00 PM CDT

Reception & Dinner

Sunday, June 29, 2025

8:00-9:00 AM CDT

Breakfast

Complimentary Breakfast for Hotel Guests

9:00 AM -12:00 PM CDT

Conference Sessions

12:00-12:30 PM CDT

Conference Closing