Schedule
PURA Syndrome 2025 Conference | June 27–29Over the conference weekend, we’ll engage in a lot of discussions and have opportunities to ask important questions. We’ll draw on the collective experience and insights of our scientists and families through open dialogue. We’ll have open and important conversations, learn from the experts and each other and uncover the inspiring people who are part of our community.
All times listed are in Central Daylight Time (CDT) below, but please check your local time zone to the time listed to be sure you have the correct time. Schedule is subject to change.
Below is an outline of the schedule. Keep checking back for updates as they become available!
Friday, June 27, 2025
9:00 AM – 3:00 PM CDT
Optional Activites around Dallas
For families that are coming in Thursday evening, we will have some suggested activities for you to participate in.
3:00-5:00 PM CDT
Registration and Meet & Greet
5:00-5:45 PM CDT
Welcome and Opening Session
Liz Astridge &
Eva Tucker
State of the Foundation/Town Hall
6:00-7:30 PM CDT
Evening Reception
Atrium Bar
Casual Meet and Greet at the Atrium Bar: Attendees with accommodations at Embassy Suites will receive 2 complimentary drink tickets per room (Valid from 5:30 – 7:30 pm…after 7:30 it will be a cash bar). Cash bar for those not staying at the hotel.
Saturday, June 28, 2025
7:00-8:30 AM CDT
Breakfast
Complimentary Breakfast for Hotel Guests
9:00 AM -12:30 PM CDT
Conference Sessions
12:30-1:30 PM CDT
Lunch
1:30-5:00 PM CDT
Conference Sessions
5:00 PM CDT
Brief closing for the day
6:30-8:00 PM CDT
Reception & Dinner
Sunday, June 29, 2025
8:00-9:00 AM CDT
Breakfast
Complimentary Breakfast for Hotel Guests